Patient identification spreadsheet data collection
Closed
Clinical data collection
Closed
Organisational data collection
Closed
Publication date
Late 2027
This study is currently under development. Focus groups
A series of patient and parent carer focus groups will be scheduled for April 2026. The outputs from these meetings will inform the discussions with the Study Advisory Group and will feed into the design of the study protocol and data collection materials. For more information, please email nec@ncepod.org.uk