Data collection for study: Open Publication date: Autumn 2024
Aim:
To identify and explore areas for improvement in the end-of-life care of patients aged 18 and over with advanced illness, focusing on the last six months of life.
Orgnisational objectives to review:
Communication between the healthcare providers
The multi-disciplinary team approach
Equity of access to palliative care services
The management of the ‘acute’ end of life pathway and ceilings of treatment including appropriateness of interventions
Orgnisational objectives to review:
Management of multiple admissions
Recording and communicating patient’s wishes across primary, secondary, community teams.
Adequate communications with patient, families and carers
Evidence to support advanced care planning in achieving key quality outcomes
Participation:
All NHS acute and community hospitals where patients have died between 1st April 2022 - 30th September 2022 inclusive, with one or more of the following conditions; dementia, heart failure, lung cancer and liver disease.
All NHS acute and community hospitals where patients have been discharged to the community between 1st April 2022 - 30th September 2022 inclusive who have subsequently died within six months.
Mental health trusts are eligible to participate in the end of life care study that we are running, although we appreciate that a small number of patients may be identified. This study is applicable to Trusts/Health Board in England, Wales and Northern Ireland
Data collection
Patient identifier spreadsheet Patients aged 18 and over who died in hospital between 1st April 2022 - 30th September 2022 inclusive, with an ICD10 diagnosis code on discharge in any position, with a primary diagnosis of either ischaemic heart disease, heart failure, lung cancer, liver disease or Dementia and Alzheimer's disease.
Deaths in the emergency department will be included.
Patients aged 18 and over who discharged to the community between 1st April 2022 - 30th September 2022 inclusive, with an ICD10 diagnosis code on discharge in any position, of either ischaemic heart disease, heart failure, lung cancer, liver disease or Dementia and Alzheimer's disease, and who have subsequently died within six months. Clinician questionnaires
Up to 6 cases per hospital will be sampled for inclusion in the peer review aspect of the study. A questionnaire will be sent to the named consultant, or the most appropriate clinician, responsible for the patient’s care when they were treated in hospital. Case note extracts for review
Case notes will be requested for all patients included in the peer review aspect of the study. EXCLUSIONS:
Deaths due to trauma, drowning, suicides, homicides, drug overdose or poisoning Organisational questionnaires
Questionnaires will be sent to all hospitals participating in the study via the online questionnaire system..
Any other queries relating to this study should be also addressed to eolc@ncepod.org.uk.
This page will be updated regularly so please check for further information.
This page will be updated regularly so please check for further information.
