There are three audit toolkits for this study. Please click on each link here to download them:ongoing care, hospital admissions, and new initiations. We hope you find this useful and if you have any feedback please do contact us at Please can you advise your local audit department if you plan to undertake this audit, it is important that they are made aware of it for the benefit of demonstrating Trust/Board activity and also so that they are in a position to support you and endorse the activity for your benefit.

Study Questionnaires
Below are a list of questionnaires used in the study available for download. Click each to download as a pdf file.
Lead clinician Questionnaire
Admission to hospital questionnaire
Community team clinical questionnaire
Tracheostomy insertion questionnaire
Organisational questionnaire – Paediatric acute services
Organisational questionnaire – Adult acute services
Organisational questionnaire – Paediatric community services
Organisational questionnaire – Adult community services
Reviewer assessment form
Health and social care professional survey
Patient and parent carer survey